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Connor was born on February 15th, 2011 and shortly after was diagnosed with Sturge Weber Syndrome.
Sturge–Weber syndrome is a rare congenital neurological and skin disorder. It is one of the phakomatoses and is often associated with port-wine stains of the face, glaucoma, seizures, mental retardation, and ipsilateral leptomeningeal angioma(cerebral malformations and tumors). It is characterized by abnormal blood vessels on the brain surface. Normally, only one side of the brain is affected.
"Over the past 3 years, Connor has been through so much." his mother told MONN "And we are not going to stop fighting for him. On July 15, 2011, at only 5 months old, Connor suffered through his first stroke." Since then, he has fought through two more strokes and this little boy is not even 4 years old yet.
Recently, his mother received a letter in the mail from the Make A Wish Foundation for Connor. On June 4th Connor, his mother, and his "girlfriend" made a trip to the Make A Wish Party where his mother later posted on his Facebook Page (Connor's Battle with Sturge Weber) "There are absolutely no words to describe how I felt... When we first walked into the Make A Wish party... ...I was so nervous." But their night was just beginning.
After being introduced to everyone at the door, Connor received a special button that said "Ask Me About My Wish." When asked by the higher ups at Make A Wish, he smiled and said "Goofy." His own way of saying Disney. As Connor was the Guest of Honor at the Dinner, he was awarded with a brand new iPad Mini, and couldn't stop thanking everyone for his gift.
MONN asked one of the hardest questions anyone could ever ask during an interview with Connor's Mother, when we asked, how long do the doctors expect Connor to fight with Sturge-Weber Syndrome? The response was overwhelming "It depends. Only five percent of kids have this bilateral and Connor has it bilateral. There is no cure for him. If he had it unilateral he could have brain surgery. We just pray . And take everyday as we can."